Another Fit

Dad slept almost all day and it was only around 5pm that he was more awake and we managed to get him to eat anything (some strawberries) So much for getting more fluids and fibre into him.  He was more alert with the afternoon visit from the nurses and when they said "We'll be off now then" Dad said "Oh good" He didn't mean to be rude, we've noticed in fact that he makes an extra effort to behave with visitors, so it brought a smile to our faces (and the nurses took it well). After dinner Mum, my brother and i settled with Dad to watch the television and Dad had another small seizure. It was over a bit quicker than last night and we put him in the recovery position to sleep it off.

Piccadilly Circus comes to Ightham

Today has been extremely busy. The head continuing care nurse came early this morning to assess what sort of care Dad needed from her team. While she was here the bed arrived and was erected. Mum and i played with it to test which button did what so we wouldn't end up folding Dad in half once he was in it... The Macmillan cancer nurse came at lunchtime and helped us walk Dad downstairs. He needed a lot of support as he is very weak and wobbly on his feet but we made it. He opted to get into the bed straight away and reports it to be very comfortable. He is clearly happy to be reunited with Sky television; he watched a combination of BBC and Sky news for 4 hours this afternoon. He even waved Mum to one side when she stood in his view at one point. Then we had a pair of continuing care nurses turn up earlier this evening to give Dad a wash and help him brush his teeth. Mum also managed to pop out to the surgery to ask the doctor to prescribe Dad's medication in liquid form, as he is now struggling to take pills. In between all of this i have dived in and out of my work email. We are all wiped out now, even the cat, not that she did much. Mum did lock her in the garage for a few hours earlier though, who knows what she got up to in there.
Tomorrow we expect Dad's brother, sister-in-law and Dad's mother aka Grandma. It is much better he is downstairs now as he can be involved in everything with everyone. Mum and i have taken a few of our lunches upstairs this weekend to eat with Dad in the bedroom, but we can't do that with three visitors.

Scan news

This week Dad had a full body scan, the first since September and the completion of his radiotherapy. We have noticed over the past fortnight that he is increasingly tired, confused and headaches have returned, so feared the worst, but in fact although it revealed that the metastasis on his left side is growing (two months ago it was 4cm and it is now 6cm) it also showed that the whole brain radiotherapy has slightly reduced the size of the metastases in his brain. The oncologist, recognising the return of symptoms, has increased Dad's steroid dose again. He is now on 4mg of dexamethasone a day (originally put on 16mg a day back in August and since weaned down to 2mg a day week by week) This should reduce the swelling surrounding each metastasis in his brain, reducing the pressure on his brain and hopefully the symptoms. We were told Dad is not well enough for an operation  but he will be given radiotherapy for the metastasis on his left side.
Scans aside, Mum and Dad are doing well for cake at the moment, as their neighbour is kindly providing a regular supply of home-baked goodies. Dad has always had a sweet tooth, so he is very much enjoying this. He even has enough appetite to wolf down several at a time! Some golfing buddies came round and my cousin visited too with his girlfriend. Dad enjoys seeing people but gets tired quickly at the moment and zones-out a bit during conversations. Having said that, he was cheerful at lunch out on Saturday and when asked how the doctor's visit was he replied "He was very well thankyou!"

Visitors

We’ve had lots of visitors recently. I think it is easy to not truly realise how loved you are until something horrible like this happens. Family and friends have changed their existing plans and created last-minute ones in order to pop in and see Mum and Dad over the past few weeks. Dad has especially enjoyed seeing everyone. It keeps him cheerful catching up with everyone and hearing what is going on in everyone else’s lives. He is thoroughly enjoying being sociable. It does tire him a bit though when everyone is coming and going, so Mum is being careful not to have too much going on in one day and Dad is getting some naps in. I am another keen visitor and have been able to establish a routine of working from home on Fridays, which means I am able to spend long weekends with Mum and Dad starting on Thursday evenings, often with a Chinese takeaway! My brother has been down frequently too and is often put to work changing lightbulbs and heading missions into the loft, to name a few. He has also kept us entertained with a history of spectacular defeats on the football field.